, a resource of the Christopher & Dana Reeve Foundation, is a safe and secure online social networking site with a robust discussion area on many areas of paralysis, including caregiving.
Caregiver Action Network
educates, supports and empowers families who care for chronically ill, aged or disabled loved ones
National Alliance for Caregiving
is a coalition of national groups that supports family caregivers and the professionals who help them.
The Rosalynn Carter Institute for Caregiving
establishes local, state and national partnerships committed to promoting caregiver health, skills and resilience.
is a national organization that gives support to wives, husbands, and partners of the chronically ill and/or disabled. Addresses issues common to family caregivers: anger, guilt, fear, isolation, grief, and financial threat.
is a web community for families and healthcare professionals who care for chronically ill or disabled family members.
The Family Caregiver Alliance
(FCA) operates the National Center on Caregiving to develop support programs for family caregivers in every state.
offers a caregiving resource center, including legal issues, long distance caregiving, end-of-life issues. Toll-free 1-877-333-5885.
magazine offers topic-specific newsletters, online discussion lists, chat rooms and an online store.
National Respite Coalition Network
helps parents, caregivers and professionals get a break using respite services in their local area.
National Caregivers Library
is large source of free information for caregivers.
Shepherd’s Centers of America
(SCA) is an interfaith organization that coordinates nearly 100 independent Shepherd’s Centers across the United States to help older adults remain independent.
Hiring and Management of Personal Care Assistants for Individuals with SCI
is a downloadable booklet from the SCI Project at Santa Clara Valley Medical Center. Covers everything from locating and hiring to training and paying personal assistants. Includes forms, checklists and resources.
CareCure Forum for caregivers. Active and helpful message board for loved ones and caregivers of people living with paralysis.
Spinal Cord Injury Caregivers is a forum on Yahoo! to share information and to support other caregivers who are caring for people with SCI.
Nursing Home Compare, sponsored by Medicare, offers information about the past performance of most nursing homes in the U.S.